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England Infected Blood Support Scheme privacy notice

The NHS Business Services Authority (NHSBSA) is responsible for this service.

Why we process your information

We will use the information you provide to:

  • assess your application
  • make payments in accordance with the England Infected Blood Support Scheme (EIBSS)
  • check for fraud and errors
  • analyse general trends to support more effective planning of NHS services

By law, we must process this information on behalf of the NHS.

We may contact you about taking part in surveys and research to learn what you need from our services.

Sharing your personal information

We may share your information with:

  • administrators of other Infected Blood Support Schemes in the UK to ensure you are directed to the correct scheme, including data matching activities for the purposes of preventing fraud
  • NHS Business Services Authority to make payments under the Infected Blood Interim Compensation Scheme (ICSP)
  • medical professionals for the assessment of any future applications/appeals made
  • the Department of Health and Social Care for planning and information purposes
  • Russell Cooke Solicitors to obtain the necessary information to make accurate payments
  • the Policy Innovation and Evaluation Research Unit (PIRU) team based at the London School of Hygiene and Tropical Medicine (LSHTM) and the London School of Economics and Political Science (LSE) for research purposes. PIRU are undertaking research regarding the need for psychological support services for people who have received infected blood and/or infected blood products (or for their family members). Limited share between January - February 2023.

We may share information to help prevent fraud and error.

Keeping your personal information

No personal data will be deleted before the Infected Blood Inquiry has concluded – data will only be kept for as long as the purposes for which it is collected and processed, and this will be reviewed at the conclusion of the inquiry.

Your rights

The information you provided will be managed as required by Data Protection law.

You have the right to:

  • receive a copy of the information the NHSBSA hold about you
  • request your information be changed if you believe it was not correct at the time you provided it
  • request that your information be deleted if you believe we are keeping it for longer than necessary

Find out more about your rights and how we process information.